Celine Dion says she's 'determined' to return to the stage after stiff-person syndrome diagnosis

Celine Dion speaks onstage during the 66th GRAMMY Awards at Crypto.com Arena on February 04, 2024 in Los Angeles, California.
Celine Dion.Kevin Winter/Getty Images for The Recording Academy
  • Celine Dion marked International Stiff-Person Syndrome Awareness Day with a post on Instagram.

  • She said she was focused on overcoming the disorder.

  • Dion revealed her diagnosis in 2022.

Celine Dion said she was "determined to one day get back onto the stage" while reflecting on her stiff-person syndrome diagnosis.

The "My Heart Will Go On" singer, who revealed that she had been diagnosed with the rare neurological disorder in 2022, shared her goals for the future in an Instagram post on Thursday to mark International Stiff-Person Syndrome Awareness Day.

"Today the world recognizes International SPS Awareness Day," Dion, 55, wrote.

"As many of you know, in the fall of 2022, I was diagnosed with Stiff Person Syndrome (SPS)," she continued. "Trying to overcome this autoimmune disorder has been one of the hardest experiences of my life, but I remain determined to one day get back onto the stage and to live as normal of a life as possible."

The message was shared alongside a photo of Dion with her three sons, René-Charles, and twins Nelson and Eddy.

Dion went on to thank her family and fans for their continued love and support before sharing some words of encouragement to others who have been affected by the disorder.

"I want you to know you can do it! We can do it!" she wrote.

According to the Johns Hopkins Medicine website, "stiff person syndrome is a rare autoimmune neurological disorder that most commonly causes muscle stiffness and painful spasms that come and go and can worsen over time."

It most commonly develops in people aged 40 to 50, and there is currently no cure, per the site.

Dion announced that she'd been diagnosed with the condition in an emotional video published in December 2022.

In May 2023, she canceled all of her upcoming tour dates to deal with the condition.

Celine Dion at the launch of "Celine," her second headline residency show at The Colosseum at Caesars Palace on August 27, 2015
Celine Dion, pictured here in 2015, hopes to be able to perform again in the future.Denise Truscello/WireImage/Getty Images

"I'm so sorry to disappoint all of you once again," she said in a statement posted to social media at the time. "I'm working really hard to build back my strength, but touring can be very difficult even when you're 100 percent. It's not fair to you to keep postponing the shows, and even though it breaks my heart, it's best that we cancel everything now until I'm really ready to be back on stage again."

Dion made a surprise appearance at the Grammys this year, however, presenting the album of the year award to Taylor Swift.

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